Wednesday, June 24, 2009

Mr. Smartie Pants

Mandy, a dear old friend, is here for her summer visit. Last week she was outside with Evan watching him as he rode his bike. She said to him, "Mandy doesn't want to run too much. " He said, "Did you just speak in the third person?" She had to ask him to repeat himself to make sure that was what he said.

Ryan and I can't figure out where he learned it, but we love it.

Wednesday, June 03, 2009

Mothers of Special Needs Kids

I read this today on an autism group I belong to. I liked it. It moved me to tears...and then some more tears....and then some more....I think you see the picture.

For Chosen Mothers
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of a child with special needs. Did you ever wonder how mothers like this are chosen?
Somehow I visualize God hovering over earth selecting His instruments for propagation with great care and deliberation. As he observes, He instructs His angels to make notes in a giant ledger.
Finally, He passes a name to an angel and smiles, "Give her a child with special needs."
The angel curious. "Why this one, God? She's so happy." "Exactly", smiles God. "Could I give a child with special needs a mother who does not know laughter? That would be cruel."
"But has she patience?" asked the angel.

"I don't want her to have too much patience or she will drown in a seal of self-pity and despair. Once the shock and resentment wears off, she'll handle it.
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world She has to make him live in her world and that is not going to be easy."
"This one is perfect. She has just enough selfishness. "

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she's to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says "Mama' for the first time she will be present at a miracle and know it! When she describes a tree or sunset to her child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see... ignorance, cruelty, prejudice... and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side.

Oscar turns 1 !

Oscar, Oscar, how is it possible that a year has passed since the day you were born. I simply cannot believe it. Look how far you have come.

Oscar has had a tough year but you would never know it to look at him. He is truly the happiest baby I have ever seen. He is always laughing, always blowing bubbles, or making fun sounds, always ready to have some fun. Even through his stays in the hospital and many doctor's visits he is always pleasant and happy.

Oscar always wants to play with his brothers. He will follow them to the ends of the earth. They are the ones who make him smile the biggest and laugh the hardest. Whatever toy or game they are playing he always wants to be right in the middle of it, sometimes to his brothers chagrin. They all love each other so much, though, and that is what brings me the most joy in this life. I really hope they will always remain friends.

We also celebrated Oscar at Lake Tobias on Saturday. He had a blast! The safari bus ride was one of best things he has ever done. He was simply having the time of his life. We had to keep a tight hold on him or I think he would have gone over the edge to get to the animals.

Oscar! We love you so much!

Griffin's Birthday

Our sweet boy turned three last week and we went to Lake Tobias again this year to celebrate. He simply loves to see the animals and really enjoys making their sounds and trying to find them in their cages.

This birthday was bittersweet for me because there were things that really brought to my attention his disability. I feel that there were so many things that he should understand but didn't. He really didn't understand that it was his birthday or the concept of a birthday party that was for HIM. He just knew we were singing and sang with us. He enjoyed everything we did but simply did not fully understand it. It was just tough for me.

That said I simply loved watching him. On his birthday we got him a much loved lightning mcqueen toy. His favorite character is Frank, the big farm vehicle that chases Lightning, and this pack came with a Frank toy. He was extremely thrilled and so much fun to watch.

Then at Lake Tobias he was just so excited about everything. He is pleasant and sweet and so loveable. There are not many people who Griffin cannot charm. When he saw the alligators he screamed out, "Hey, adigtors, wake up! It's me, Griffin!" What a fun day it was.

This is my favorite picture of the day. What gorgeous eyes.

Griffin, we love you so much!

Small Scare

Yesterday I had a morning appointment at the OB. It was just a normal prenatal visit for them to make sure all was well and listen to the baby's heart. Well, after searching for some time they could not find the heartbeat. It was a harrowing drive for me to the the ultrasound office. I was alone and unable to find Ryan for awhile (the 6th graders were having a softball game) and quite honestly I was terrified.

All was well. The baby was moving a lot and even sucking their thumb. It was great to get an extra chance to see the baby. Also she was able to see that the placenta previa is gone. Yeah! That is very good news and really helped put my mind at ease.

I'm not fat for my height. I'm short for my weight.